Compendium of Canadian Legislation Respecting the Protection of Personal Information in Health Research - New 2005 update

The Compendium of Canadian Legislation Respecting the Protection of Personal Information in Health Research is specifically designed to provide users with a panoramic view of the legislative landscape across the country. It contains relevant excerpts of Canadian legislation, both federal and provincial, respecting the right to privacy and data protection principles applicable to health research. Organized by theme, each chapter allows comparisons to be drawn across different jurisdictions and certain trends to be deduced. 

Policy-makers are currently exploring ways of respecting the interests of Canadians in keeping their personal information private, while also enabling access to that information in order to better the health of the population, improve health care services and maintain a sustainable health care system. In this context, the Compendium can serve:

  • as an information tool providing direct and convenient access to legislation in this area;

  • as a communication tool to facilitate dialogue between stakeholders in the current privacy debate; and

  • as a working tool for legislators and policy-makers as they consider the development of a harmonized policy framework respecting the protection of personal information in the health sector.

A Compendium of Canadian Legislation Respecting the Protection of Personal Information in Health Research, Updated June 2005 [ HTML | PDF (1,68 MB) | Help ]

This Compendium is a revised and updated version of the original text: P. Kosseim, ed. Compendium of Canadian Legislation Respecting the Protection of Personal Information in Health Research (Ottawa: Public Works and Government Services Canada, 2000).

Any revisions to the annotations in this 2nd edition do not necessarily reflect the views or the opinions of the original editor.

A limited number of printed copies of the Compendium, 2005 update or 2000 version, can be obtained by contacting the Ethics Office at ethics-ethique@cihr-irsc.gc.ca.